About Us

Hello! We're the Johnsons :) My name is Amy and I am the Wife/Mom who updates this blog :) I'm 38 years old, and a Computer Programmer for a manufacturing company. Mark (the Husband/Dad) is 40 years old and was diagnosed in late February of 2018 with the behavioral variant of a relatively rare neurodegenerative disease called Frontotemporal Degeneration or Dementia (bvFTD). He has been living in a memory care wing of an assisted living facility in Mankato since May 2018. We met in April of 2005, married in September of 2006 and welcomed three little boys {Cashel in January of 2012, Kendrick in August of 2013 and Ryan in March of 2016}, and our one and only baby girl {Kinsley in August of 2017} for a total of four kiddos!

I have been documenting our journey through marriage, parenthood, life and now the aftermath of this horrific disease for over a decade. I am learning what it's like to be a now-single Mom of 4 and raise these crazy little ones (all between the ages of 2 and 8) in these crazy days, and are so thankful for the grace God has given us to make it through each and every one! We are born again Christians who strive to raise our kids to love God and love others.

In my spare time {ha - what's that anymore?}, I love to explore outside, catch up with family and friends, experiment in the kitchen, catch up on digital scrapbooking, travel and explore new places, listen to a wide variety of music, and well...blog!

I have had some incredible opportunities over the past year to advocate not only for FTD awareness, but also for caregiver support, appearing on a 60 Minute segment on the disease (Frontotemporal Dementia), as well as presenting at the AFTD Conference in Los Angeles in May 2019 and the National Caregiver Conference in Chicago in November 2019.

If you have any questions for me, email me at amyjohnson2006{at}gmail{dot}com!